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최미영 ( Choi Mi-Young ) - 서울대학교 대학원 간호학과
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Abstract
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Congenital heart disease is the most frequently shown congenital disease among children, most of them can be corrected with operation. However, Patients and their parents need nursing intervention when they face this risky incident of operation. Therefore, parents’ experiences are absolutely needed to plan nursing intervention to give practical help to the patients and their parents. The purpose of this study is to provide basic resources to develop a feasible intervention program for the parents by understanding the experiences related to the informed consent of cardiac surgery of their child. From January to June 2003, 10 parents of children patients with congenital heart disease were interviewed who filled out Operation Agreement before the primary operation after they are diagnosed as congenital heart disease in pediatric chest surgery of A hospital in Seoul. They were asked to give opinion regarding pre-operation needs and the interviewed information was analyzed. The results of this study are as follows : Firstly, they were asked what they felt before they were told about the operation of their children from the doctor before filling out the informed consent of operation. They felt 1) vague, 2) confusion of choose, 3) risky, 4) resented, 5) uneasy, 6) guilty, and 7) the burden of operation.
Secondly, they were asked what they felt after they filled out the informed consent of operation and the doctor gave them detailed information on the operation of their children. They felt 1) confused, 2) responsible, 3) rejected, 4) angry, 5) plain, 6) to have hope, 7) trying to trust medical people, 8) that consolation is needed, and 9) conditional reduction of the burden of operation. Thirdly, followings are the categories of congenital parents’ demand before operation based on the analysis of experiences related to the preparation of the informed consent of operation.
1) Information Demand
⑴ Anticipatory information
⑵ Concrete and precise information
⑶ Individual information
2) Support
⑴ Empathy
⑵ Parental supporting
⑶ Support of parents in the same situation
3) Education and consulting
⑴ Children-oriented Education
⑵ Consultation
Considering the results of this study, parents of the child with congenital heart disease seem to have various emotional experiences related to filling out the informed consent and they need concrete and practical helps before cardiac
surgery. This study proposes that systematic nursing intervention is needed according to the needs of the parents who have the child with congenital heart disease before operation in the field of child health nursing.
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KeyWords
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선천적 심질환, 수술 동의서 작성, 수술 전 부모의 요구
Congenital Heart Disease, Informed consent of Operation, Parents´need before Operation
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원문 및 링크아웃 정보
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등재저널 정보
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